content tagged with sma

In a statement released by Health Minister Koca, it was said, “There has been no concrete data indicating that the method put forward as gene therapy scientifically works.” However, the related medicine is now in the category recognized by the state.

Several MPs, artists, physicians and scientists have been campaigning on social media, demanding that the three quarters of Turkey’s 2020 grand New Year lottery prize transferred to the Wealth Fund be used for the treatment of children with SMA.

Doğu’s mother Şive Ülker, Deniz’s mother Zeynep Elmas and Sare’s mother Aynur Aras did not even know what SMA was before their children were diagnosed with it.